Category Archives: life

Meds: The New Frontier…? (This One Is Loooong. Also: Explicit Lyrics Warning, Because Apparently I Haz A Feelz)

Yesterday, after an entire adventure that should’ve had its own laugh track, I finally picked up my new (generic) Adderall* prescription. As I said to WeDoBallet, it sometimes seems like they specifically design the ADHD-Rx pickup process to be as difficult as possible for people with ADHD!

*Technically, my prescription is for “mixed amphetamine salts,” which is the generic formulation for Adderall. But, frankly, you guys, I can’t say that with a straight face. I just picture walking into the pharmacy and walking out with a 5-pound sack of Mixed Amphetamine Salts (white, of course, with bold black lettering, and maybe some XXXs) with the instructions: “Sprinkle on salads, soups, and entrees as needed.”

Yeah, my imagination is a weird place to live.

Getting back on meds for ADHD has been a tough decision for me — less because I wanted to prove I Can Do It My Own Self! (seriously, I really kind of hit rock bottom with that once I started dancing again; more on that in a sec) than because I’m an old-fashioned Yankee, and we’re all about Independence and Self-Reliance (and also about frugally recycling our neighbors’ discarded Windsor chairs) and it’s just a knee-jerk habit. It persists long after we realize it’s not rational.

Also a little bit because there’s a risk of ADHD meds (which are stimulants) kicking off manic episodes and because I have a history of anorexia and I wasn’t sure I trusted myself (more on those in a sec, too). And also, also because I’m just plain paranoid about meds. I’ve had bad, bad experiences with side effects, you guys.

WRT mania: I have a really good doctor, Dr. B: I feel like I can talk to her, she “gets” me, etc. She’s been Denis’ doc for years, and I’ve been seeing her since 201…3? I think? Anyway, for a while.

I started seeing Dr. B during my most recent IM’MA GO TO MED SCHOOL AND SAVE DA WORLD! phase, and she knows that I know what I’m about (and also knows when I don’t know what I’m about but think I do), so we have a really good working relationship.

She also knows that I know how to do research and have access to scads of peer-reviewed research resources through school**, so she expects me to come in well-briefed on everything and acts accordingly. She also doesn’t freak out when I, say, stop taking a daily allergy medication and switch to only taking it on the days I need it the most: in short, she trusts me to generally make pretty good decisions, and knows Denis will steer me right if I don’t.

**Speaking of which, I am probably going to lose my mind next year during the interlude between undergrad- and grad school! No academic database access! What will I do with myself! HOW WILL I EVER SURVIVE??!!!1!11oneoneone

Likewise, Dr. B hasn’t steered me wrong yet in terms of medication options. So, basically, I trust her to make sound calls when prescribing. She’s starting me off at an Adderall dose that’s on the lower end of the middle of the dosage spectrum. I’m cool with that.

Adderall IR, 10 mg. ...Mostly because I figured apost this long could use some pictures, and I couldn't come up with an excuse to put a picture of Sergei Polunin or David Hallberg here.

Adderall IR, 10 mg.
…Mostly because I figured a post this long could use some pictures, and I couldn’t come up with an excuse to put a picture of Sergei Polunin or David Hallberg here.

Which brings me to the bit about mania: stimulants can tip off manic episodes in people with bipolar disorder.

Look, a header!

Mania

The whole stimulants-kicking-off-manic-episodes thing has certainly happened to me, though normally it happens as a result of a sort of insomnia cascade effect, which goes like this:

  1. I decide to chug a little coffee or Coke Zero to help me focus on something (or just because I’m out for dinner; I’m dumb like that)
  2. The focusing effect wears off too quickly so I chug a little more.
  3. Later I can’t sleep because my brain won’t STFU, but I still have to get up in the morning, so I wind up sleeping for 2 or 4 hours or whatever.
  4. The next day I have to function (seriously, if you think I’m distractible and impulsive on a normal day, you should see me when I’m sleep-deprived! … so I suck down more caffeine.
  5. Then I can’t sleep again.
  6. The next day, EVEN MOAR CAFFEINE!!!

…and then BOOM! I’m in ManicLand, because (for me) lack of sleep is like an express train to Electric City.

So I was worried about that, but it Dr. B prescribed the short-acting version of Adderall, which should help reduce the likelihood of sleep disturbances.

For what it’s worth, this might be an upside of the whole Insurance Disaster related to acquiring my meds.

Here’s how that went down:

First, Dr. B prescribed Concerta, a long-acting methylphenidate formulation.

For whatever reason, my insurance plan only covers short-acting methylphenidate. You have to take it, like, four times a day.

Dr. B and I agreed that four pills per day is probably more than I can remember to take (and definitely more than I want to carry around with me). Likewise, a longer-acting agent is less likely to wear off just when I need it.

I hunted through Humana’s formulary to see what was covered, and it turns out that Adderall is, and that the generic form — while shorter-acting — is only $20/month (the longer-acting form is still under patent, and thus would run me $200/month for the first three months).

Dr. B felt that this would be a reasonable choice, and we swapped out the prescriptions (further hilarity ensued as I learned that my local CVS pharmacy doesn’t keep my prescription in stock, though — thankfully — the one near ballet class does).

At this juncture, I’m thinking that the short-acting version might actually be a better fit for me: I’ll still only have to take it twice per day, and I suspect it will be less likely to lead to insomnia … which, in turn, will reduce the likelihood of going Full Manic Jacket or what have you.

Likewise, while it’s called “instant release,” the effective half-life is much longer than that of caffeine — so I won’t be constantly topping-up over the course of the day (though I will either have to get used to drinking plain water at restaurants that don’t have seltzer/soda water/club soda — I like plain, still water fine, but not so much with food). In short, I will be adding a lot less stimulants to my system and doing so in a way that will be more even-handed and consistent, which should help ward off the danger of the manic spiral.

Obviously, careful symptom-monitoring is still called for, especially since I really can’t take most of the mood stabilizers currently on the market (that’s a post for another time). I’m willing to try one of the newer ones if push comes to shove, but given my history of serious side-effects, I’m really hoping it won’t. Fortunately, Denis is an exceptional spouse — very able to help me monitor my moods, and both willing and able to notify me when I’m heading for a derailment.

So, in short, with good monitoring and some help from Denis, I’m actually pretty optimistic about avoiding Adderall-induced mania.

I am, however, a touch more worried about (oh, look, another header!)…

Anorexia

I don’t talk about my history with anorexia all that often. There are any number of reasons for that: it’s sort of a Forbidden Topic for dancers; it’s an ongoing struggle that I’m not sure will ever end; sometimes it’s just One More Thing***. I mention it in passing from time to time, usually when I’m touching on points about what it’s like to have lived all over the BMI spectrum. But I rarely discuss it depth.

***In fact, like ADHD, eating disorders occur at disproportional rates in people with bipolar disorder. So it isn’t necessarily “just one more thing” so much as it’s “just one more part of the same thing.”

I guess the other thing about anorexia is that it doesn’t stay contained. It touches every single corner of my life, and sometimes that frankly pisses me off.

And, then, there’s the fact that I’ve had good treatment and I largely have the behavioral end of things basically under control (I don’t starve myself anymore, generally speaking, though I do still do some of the other behavioral things that are associated with anorexia. It’s been a long time since my BMI was <18.

None of this means that the thought process is gone. It just means that I have tools to fight it.

Ballet, curiously enough, is one of those tools — and yet, at the same time, it’s a complicating factor.

On one hand, you can starve yourself and dance — but not for very long, and especially not as a male dancer who is expected to command explosive jumps and sooner or later pick up other dancers and haul them around and stuff. You can only perform so long before your body just says, “Fuck you, no.”

On the other hand, as a dancer, you spend a lot of time looking at yourself in mirrors, and a lot of time looking at other dancers. Even if you don’t already have serious body-image problems, you’re going to wind up thinking about your body, comparing it other bodies, and so forth. If you do have serious body-image problems, chances are good that sometimes that’s going to exacerbate them.

I’m walking a fine line, right now, between performance and obsession. In short, my leg muscles are pretty hypertrophic, so extra fat on my legs can interfere; likewise, while my legs are very capable of adapting to the load required of them, weighing less makes their job easier — it’s easier to launch 160 pounds than it was to launch 174, which means higher, cleaner jumps****.

****Let me point out that muscle adaptation would’ve led to higher, cleaner jumps regardless. You don’t have to be skinny or even slender to dance well and beautifully; I see proof of that every day. For me, a lot of this is fine-tuning, and a lot of it is not strictly necessary. This probably also deserves a post of its own someday.

The thoughts that could lead to excessive restriction are still there. Fortunately, dancing is hungry work; so is cycling. I’ve pretty much managed to stay on top of maintaining a balance, but there’s a part of me that wants to obsess, that wants to restrict.

There’s a voice in my brain that argues against the rational, sane one that tells me to eat enough to sustain my strength and so forth; that voice still tells me I’m weak and undisciplined when I don’t do all the behavioral stuff I used to do when I was surviving on 600 calories a day (which was my target for several months when I was 19) and you could count every rib and vertebra in my body.

Seriously, looking like this does not help you dance better. Source: This file comes from Wellcome Images, a website operated by Wellcome Trust, a global charitable foundation based in the United Kingdom.  Licensed under Creative Commons 4.0.

Seriously, looking like this does not help you dance better.
Source: This file comes from Wellcome Images, a website operated by Wellcome Trust, a global charitable foundation based in the United Kingdom. Licensed under Creative Commons 4.0.

Here’s the thing: stimulants are appetite-killers, and I’m a tad concerned that it’s going to be too easy to take advantage of that. Like, “Oh, I’m not hungry, I don’t really have to eat.”

Denis doesn’t think I’ll fall prey to that: he trusts me to be rational about it and remain cognizant of the fact that ballet requires fuel.

I hope he’s right.

I think the problem is subtler than that, because I know myself pretty well. In the past, my pursuits always required fuel: but I would do this thing where I would figure up what the daily caloric requirements were, then shave it back a little, then (when, inevitably, my body didn’t immediately implode) I’d shave it back a little more, and so forth. It was an insidious process.

I realize that by saying all this I’m kind of building a framework for letting myself off the hook if this does go down: but I’m also making an effort to be frank about this and sort of keep it in front of my own face.

Like, I’m saying, “I know this is a Thing. I know I need to pay attention to it.”

And, honestly, I’ve figured out at this point that between dancing, school, my household responsibilities, and work, I really, really do need help. My coping mechanisms are awesome, but they only let me handle a very limited amount of responsibility at a time — and that’s kind of how I got here.

(Look, one more header!)

About Hitting The Bottom

I’m gonna go ahead and admit it: I’ve trotted out my ADHD high horse once or twice in the past (though not in a long time).

I struggled unsuccessfully through most of my primary and secondary education, then I figured out how to be a good student in the last two years of high school. (I’ve written a bit about this before.)

Somehow, I thought that meant I had ADHD licked: like, I had it all figured out.

Never mind that once I left home, unless I was living alone in an environment I could completely control, my house was always in chaos. Never mind that I had terrible trouble making appointments and dealing with the vagaries of Grown-Up Life. Never mind that I couldn’t handle having more than three or four bills. Never mind that planning things like shopping and budgets was, like, completely beyond me, or that I would completely lose all the important stuff I needed to keep track of (wallet, keys, phone) if I didn’t set it down in Exactly. The. Same. Place. every time I came home.

I was able to remain in denial pretty well because I did fine when I lived alone and lived very simply — but that’s the thing. When I lived alone, I could choose to live as simply as I wanted — so I had almost no furniture, minimal clothing, minimal dishes, and so forth. I had only one income stream.

I even kept the bills to a minimum — I had one credit card for things that might require such a thing, and other than that it was just rent (which, happily, included water), gas/electric, a pre-paid phone, and cable internet (but not cable TV). My ideal apartment would’ve included all utilities in the rent, just to make things even simpler. I used cash for most purchases, so I was able to track my finances in my head: I just kept a running total, subtracting as needed, and checked my balance online once a day to make sure I was on track.

Grocery shopping for myself was easy: I know what I like, and I don’t mind eating the same thing day after day. $50 was more than enough to feed me very well for a week, and (unless I felt like going on a shopping adventure) I could do my marketing on the way home from work.

Once a week, I’d treat myself to a dinner out, and going home was always nice because my apartment was always impeccable. When you live alone, you don’t watch TV, and you don’t have a lot of furniture to navigate around, it’s actually pretty fun to sweep and mop and so forth. I didn’t have any carpet or a lawn to worry about. I did have a nice, deep bath tub and my own water heater so I could read in the bath all I wanted.

All of that made it possible for me to manage. It was actually a really nice way to live, and it’s totally how I’d choose to live now if the choice was mine alone — but living with other people, even one other much-adored person, really complicates things unless that person is willing to live the same way.

Predictably, as someone who needs to live an incredibly minimalist lifestyle in order to maintain, well, order, I married a self-professed slob with mild hoarding tendencies and complicated finances (as a self-employed healthcare professional, he has a zillion income streams; you guys, that turns budgeting into a straight-up nightmare). Said self-professed slob had also already been living in the same house for twenty years, so he’d had time to accrue lots of stuff.

Suddenly, there were tchotchkes, nicknacks, and bills (oh, my!). Turns out I hate tchotchkes, and I really hate having to move them to clean around them. But it would take me a while to figure that out.

In my naievete, I offered to take over managing the finances, because Denis hated doing it. I also naively assumed that because I’d been great at managing my apartment by myself, I’d be great at managing the housekeeping around here.

Um, oops?

It turns out that clutter fills me with nerve-shattering despair. It also turns out that I find it distracting as hell. It turns out that people with ADHD have trouble tidying up after self-professed slobs. It turns out that I have trouble putting stuff away when I have to move other stuff to do so, partly because WTF, but also partly because that involves more working-memory resources than I normally have for that kind of thing.

In short, it turns out that I’m, like, horrible at everything I signed up for.

And then I added school.

There was chaos. The bills got paid on time, the finances got reconciled (eventually), and the house stayed … well, sanitary, more or less, and would get de-cluttered a couple times each semester.

And then I added ballet.

And then I stepped up the ballet schedule.

And then everything went to hell in a hack (though I was much, much happier than I’d been for a while, because, hello, ballet!).

Then I realized I wasn’t managing anymore. Not even close.

I’ve been making noises for a while about needing meds for ADHD before — there’ve been a number of times that I felt like I was hanging on by the skin of my teeth.

Last semester, I managed to totally screw up the paying-the-bills, tracking-the-finances, keeping-the-house-livable part of my job.

I also accrued the first non-A grade I’ve taken in my post-secondary education: a B- in precalc. I could have done much better, but I had a hard time focusing, getting the homework started when I should have, getting in enough practice, and keeping my head together on exams. It was like grade school all over again (I didn’t wind up with a D because at least I have coping mechanisms now).

I did, at least, succeed in pulling down an A+ in senior seminar, which is kind of a big deal — and at the time I sort of took that as evidence that maybe, somehow, I could still arrange my waterfowls in a linear array under my own power.

You guys, I tried hard. I really did. Sometimes you try all you can, and you still find out that you just can’t. Sometimes the best coping mechanism in the world, applied with discipline and diligence, only gets you so far.

Enter the meds.

Medication isn’t going to make my ADHD magically go away. Nor will it solve all my problems by itself. I still need my coping mechanisms. Medication isn’t magic.

It is, however, a tool. It’s like having a little electric assist for your bike if you have some kind of condition that means your legs can’t build strength very well: you want to be able to ride with your friends, so your electric-assist bike lets that happen. It doesn’t ride the bike for you. You still have to pedal; you still have to steer; you still have to think about what you’re doing. It just lets you keep up with your friends.

I am hoping the meds will help me handle all the stuff I’ve got on my plate right now.

Having taken my first dose this morning, I do feel like my mind feels more settled; more able to focus on the task at hand. I don’t feel like all of the WARNING! klaxons are constantly going off because of the clutter around me (which will really help when I get to work de-cluttering). I feel more able to, you know, keep a thought in my head (working memory is a huge, huge problem for me).

Edit: I’m also much, much more able to sit still. I learned last Friday that the uncomfortable, dysphoric feeling I get when I have to sit down for more than ten minutes a time is, in fact, a symptom of ADHD. I knew I was way out there on the hyperactivity scale, don’t get me wrong, but I always assumed everyone experienced that sensation.

Task-switching is easier (also a huge, huge problem for me): Denis came home to take care of a fashion emergency; a tech from the utility company came over to re-light all our pilot lights after doing some work that required them to shut off the gas to the neighborhood; I got up to do some laundry — I was able to do all of these things without enormous difficulties in returning to the main task I’m doing right now (which is writing this post).

These might seem like minor things, but the time I lose switching tasks adds up enormously over the course of any given day (especially since I sometimes lose the narrative thread entirely while doing so).

So, basically, my “mixed amphetamine salts” aren’t going to magically make everything okay for me. The house is still in chaos; the finances are still a mess. (Amazingly, when I took my first dose this morning, Disney Spirits did not appear and fix all that for me! THE MOVIES LIE, YOU GUYS.)

The difference is, I feel like the meds might actually help me both get caught up — which is literally impossible for me, otherwise: that was the first lesson I learned about how to be a student with ADHD — never get behind. EVER. They should also help me keep on top of things once I’m caught up, even though there’s a lot going on in my life right now, and even though there’s going to be even more going on in the near future (ballet! work! grad school!).

Speaking of which: this post is now officially long enough.

In future posts, I intend to write about:

  • Treatment decisions (why we’re treating ADHD as the primary disorder, rather than bipolar, even though bipolar is arguably the more dangerous of the two)
  • Mechanisms of action
  • Anorexia (because I suppose eventually I do need to get around to that)
  • How my ADHD meds impact ballet

…and similar related stuff.

I’ll also keep you posted on how the meds are working — in other words, not mechanism of action (literally how the meds work), but what kind of differences they’re making in my life, both the good and the bad (because it’s unrealistic to expect a medication to be perfect).

That’s it for now.

Today’s to-do list (I guess I’ll strike these off as I complete them; I’ve also added a few that I forgot before):

  • Entomology homework.
  • Clean catbox.
  • Take out trash.
  • Fold ballet laundry.
  • Wash and fold other ballet laundry.
  • Invite Eric and Larry to Commencement.
  • Create a resource to use for SI tomorrow.
  • Reconcile the November bank statement (yeah, I told you it was bad).
  • Start sorting the dining room.
  • Make dinner.
  • Work on choreography.
  • Watch that one Sergei Polunin video 6,000 more times. Oh wait, did I say that out loud?

…Not necessarily in that order.

The Message and the Means

A little while ago, one of my blog entries was Freshly Pressed (I’ll link to it shortly; I don’t want to ambush-link it, for reasons I’ll discuss below). I was surprised by this and, to be honest, also a little alarmed: oddly enough, although this blog is public and I know people might read it, it felt a little weird and exposed (in the sense that we use the word in choral music or ballet) to know that suddenly people absolutely and for certain were reading it. Especially since the post in question was one of the more sensitive ones.

I’m glad that that happened, though, because some of the discussion that resulted gave me the means to think about a part of the problem of bipolar — and of mental illness and of privilege, for that matter — that’s sort of been gnawing away at me in a way that I haven’t been able to quite figure out. This particular post is the direct result of sitting with and thinking about some of that discussion.

So the post in question dealt with some of the ways in which bipolar disorder has contributed to positive outcomes in my life that I might not have experienced without it.

Note that I’m not using the phrase “ways in which bipolar disorder has made my life better.” It hasn’t. It won’t.

Bipolar itself is kind of an ongoing train wreck that you have to learn to live with; to manage. It’s not necessarily a train wreck that is guaranteed to destroy your life forever (though in my case it’s taken, like, more than ten years to figure out how to keep the trains, like, more or less on the tracks and more or less running; let alone running on time), but it’s one that absolutely can and does destroy lives in very real and immediate senses, either temporarily or permanently.

As sometimes happens with all disasters, good things sometimes come out of the bad: you meet people you might not otherwise meet. You take a different path in life than you might have otherwise taken, and maybe something good happens.

The thing is, this shouldn’t, doesn’t, and can’t nullify the very real loss that comes with the experience of disaster (literally the breaking apart of the stars, you guys; I can’t think of a better way to describe the onset of bipolar than the cosmos being rent asunder).

Nor does it mean that everyone has this experience: for many of us, disaster is only disaster — and many of us don’t survive to experience anything beyond the disaster (let’s not get into debates about the afterlife right now, if that’s okay).

Because, here’s the thing: a lot of it comes down to luck.

I am the first to tell anyone, everyone around me that I am, in short, lucky. Immensely, unimaginably lucky.

I have had every advantage in the world.

I’m white enough to count, I’m male, I grew up in a wealthy family, I had mental-health insurance, I had access both to special schools for kids with mental illness and special schools for gifted kids, I’m gay but I’ve actually never really experienced any direct oppression about it, I’ve always had enough to eat, etc. My effort had little to nothing to do with all of that. It was just luck.

And, here’s the thing: even with all this luck, bipolar has still managed to screw my life up significantly for long periods of time and, to be honest, waste some gifts I wish I could have developed. It is still experientially hellish from time to time; it still costs me relationships; it still means I do stupid crap like forgetting to pay the house insurance bill for two months in a row, or whatever.

And the good things that I have in my life that I might not have had without bipolar I have because, you know, also luck (and also because, you know, tons of therapy and aforementioned every-advantage-on-earth, which devolve back upon luck).

I didn’t mean my post to be written in a way that would invalidate the experiences of others (and this is why I’ve chosen not to link it at the top: I’ll pop a link in at the bottom, in case you want to read it; I also welcome comments on how to maybe make it less triggery; less potentially-harmful).

I did think about that a bit when I was writing it: specifically, about articles and blog posts that make mental illness sound like a happy coincidence — a serendipitous walk in the park — without also explaining that, you know, there’s a very harsh reality that comes with any serendipity one might experience, and that just because one person experiences some degree of serendipity, that doesn’t mean others can or should. That’s the problem with serendipity: it’s random. It’s chance. We have no control over it.

I hope that the post in question doesn’t read like the articles I hate (to be honest, I’ve read very few of them; the only way in which I seem to be chronically unlucky in regard to bipolar disorder is that I always seem to wind up reading the most negative, grindingly-pessimistic articles about it known to man; OTOH, that might be better than constantly being faced with chirpy BS).

I am still considering what to do about it. I feel like, at very least, I should change the title, because the title alone is enough to make people feel invalidated, stressed out, and pressured — which, frankly, we get enough of already.

Bipolar is one of those conditions that (thanks in no small part to America’s total inability to educate its populace about anything complex) tends to be treated by the average person as a kind of spiritual laziness.

It’s not.

Neither I nor anyone I have ever known who lives with bipolar disorder would choose to live as we do. Some of us would like to be rid of bipolar altogether; some of us wouldn’t mind keeping some parts of it if we could get rid of the hellish ones (IMO, both approaches are valid; neither harms the world in any way). None of us would choose to destroy our relationships, educational and vocational pathways, and financial lives the way that we do when we’re ill.

Bipolar disorder is a neurological illness. Positive thinking won’t cure it. We cannot simply choose to be well. That’s not how this works; that’s not how any of this works (yes, levity is one of my many coping mechanisms). Positive thinking is a tool that can be helpful at some points, harmful at others — but it doesn’t cure bipolar disorder, that’s for sure.

Nor can those of us with bipor choose to see gifts where there are none. For some of us — for many of us — disaster is simply disaster, unmitigated.

And here’s the thing: those blog posts, those articles? The ones that talk about disaster just being disaster?

People are writing them.

But they’re not getting Freshly Pressed.

Those articles, those posts, aren’t getting published on Huffington Post (which apparently hosted one particularly egregious article about bipolar being awesome; one I haven’t read, and hadn’t even heard of until I wrote the post I discussed above — I’m going to chalk this up to luck as well).

Those experiences are genuine experiences of mental illness, real voices that Need. To. Be. Heard. They are the experiences that are pretty much universal to mental illness: that’s why it’s called mental illness, because it’s suffering, it’s hard.

And they’re not being heard, and it’s not because they’re not writing — not because they’re not out there speaking, or singing, or creating poems, or dancing it out.

It’s because our culture (at least in the United States) admires “positive thinking” to a degree that’s actually kind of unhealthy.

It’s because posts like mine can be seen as a justification of several major cultural paradigm — be grateful; think positively; if you just work hard enough everything will turn out fine — even when their authors do not intend them to be.

It’s because, frankly, people who aren’t living with mental illness mostly don’t want to hear those messages.

(Or at least, that’s kind of how it looks from where I’m standing.)

The thing is, we need to hear those messages.

We need, in short, to know how bad it really is.

Until we know how bad it really is — how hard real, actual individual human beings; actual people, for G-d’s sake — have it, and that they are freaking well trying with every bone in their bodies, or have tried until there is no more try (because, honestly, it’s okay to give up; it’s okay to not try sometimes!) — until all of this happens, nothing, nothing is going to change.

Here’s a fact: a long time before I was born, institutions were pretty horrible places to be (not to say they’re never horrible now; but they were, on average, more universally horrible back in the day). People didn’t know that, though, because the people in institutions didn’t have voices in the culture around them.

They had lives and stories to tell, but there was no internet back then; no way for them to easily get their stories out into the world except maybe by escaping and, frankly, nobody was going to listen to someone who escaped from a mental hospital.

Then a few reporters starting taking major risks on their behalf to go into some of these institutions and bring out footage: footage that showed how bad things were on the inside; how actual living human beings were suffering in totally needless ways.

That footage, the stories that come out of that, reached people’s hearts and helped spark some real changes (admittedly, they’re not changes that have always worked out too well: we kind of dismantled a broken system but didn’t replace it with a working one, which has left a lot of people with disabilities SOL — but that’s a post for another time).

Things only changed because people started seeing the problem as a human problem: an us problem, instead of a them problem.

The cool part is that, nowadays, we have the internet, and not as many locked institutions, and it’s much easier for those of us living and struggling with mental illness to tell our stories. We don’t have to get other people to speak up for us; we’re already speaking up for ourselves.

The hard part is still getting our voices heard.

This is the part where “typical” people — people who aren’t living with mental illness, or who at least aren’t living with debilitating mental illness (because things like dysthymia are real and suck in their own ways, but don’t always prevent one from participating in the dominant culture quite as effectively as, say, bipolar or schizophrenia do) come in.

For better or worse, there’s still a kind of gatekeeper thing going on, where people who are more successful at doing what’s expected in our culture kind of get to decide which voices are going to get heard.

I don’t know how to help the gatekeepers see that posts like mine aren’t the only ones they should put out there; in fact, that posts like mine kind of aren’t even the important ones.

Because, frankly, we’ve heard the “overcoming” or “good coming from bad” kind of story over and over again; we’ve heard it so often that it’s reached the level of cultural mythos.

It’s time to put the hard stories out there.

We have the message. We just need to have the means.

So that’s it for now. As always, I hope this post hasn’t stepped on anyone’s toes. At least, if I have stepped on your toes in this post, please know that it wasn’t intentional, and I’m sorry to have caused you pain.

Same goes for my other post. Sooner or later I’ll figure out what to do about it, and how. I’m still thinking about it.

Edit: Oh, yeah. I guess I promised you a link, so here it is. Opens in a new tab.

Reflections On Another Birthday

I am a huge believer in birthday celebrations.

Not necessarily in celebrating the increment of another year in age: I have a weird relationship with time, and the significance of age is frankly kind of lost on me (it runs in the family — on my most recent trip home, Mom declared that she doesn’t plan on getting old anytime soon, maybe not ever). I mean, I don’t see anything wrong with that, and it works for a lot of people.

For me, though, it boils down to this: for a long time in my life, I just didn’t think that I was going to make it.  I didn’t expect to make it through high school, and then I didn’t expect to make it through those few harrowing years after, and then I guess a part of me didn’t expect to make it through college, because that feeling runs deep.  But here I am, almost a graduate, a little behind schedule but basically no worse for the wear.

So, basically, at some point, every single birthday became an exercise in thrilling gratitude and wild triumph: Oh my G-d, I made it!

I made it!

I made it.

That my birthday falls in February — the most-unloved month; literally “the month of fevers,” thanks, Numa Pompilius — probably adds some zest to the cake.   There’s no better time for a day of wild gratitude than smack dab in the middle of the greyest, coldest, most miserable month in the Northern Hemisphere (to be fair, I liked February in the Northeast: a month of sparkling snow and soul-clutching cold).

And then it turns out that the word “February” might actually be derived not from “the month of fevers,” but from “the month of purification”  — and that adds a whole extra layer of meaning; a moment of reprieve in the cold, purifying fire of mid-winter depression.

And then this year rolled up, and I found myself less thrilled than usual about the prospect of my upcoming birthday, and that bummed me out.

Only just now I realized: it’s less poignant because this has probably been the first year since I was thirteen that I’ve felt like, Yeah, I think I might make it, barring disasters.

And having realized that — wow.   Just wow.   I should be able to eloquently express how immense that is, but I can’t.  It is literally breathtaking, not least because it happened so casually, like, when I wasn’t even looking.  And that’s a kind of loss, in a way, but Holy G-d, what an amazing loss!

So break out the cymbals and the drums after all: this is still, for me, a magic day.  Still a day on which I can look back and say, I made it — but also one on which, at least for now, I can look ahead and say, I think I’m going to keep on making it.

I Don’t Think This Is Quite What Our Grandmothers Had In Mind

Let me begin by saying I’m a dude who grew up in something as close as possible to a parallel universe: a house full of strong women with a female breadwinner (an executive at a large utility company); divorced parents who got along brilliantly; a father who really saw women as equals, who valued friendships with women (including his ex-wife, my Mom) immensely.  In short, a reality where equality between the sexes was a reality.

I sort-of got that sexism was a thing, and at the same time, I didn’t really see it in action.   I kind of labored under the delusion that sexism was over, or that it only happened in far-away places — other countries, maybe. Or maybe Texas?

I’m sure now (because hindsight is 20/20) that my Mom and my Grammy and my sister experienced it: in fact, we all do. The extent of my exposure, as a kid, came in this sort of vague knowledge that my sister got picked on for being bigger than other kids in a way that boys her size didn’t — and even that, I only figured out in retrospect.

Well, and then there were the weird messages conveyed by TV shows. Oh, and road signage*.

*Seriously, when I was little, I was eternally mad about the fact that the standard “school crossing” sign was a big brother ferrying a little sister across the road — why not the other way ’round? Girls were just as good at ferrying little siblings as boys!

Anyway, we were busy, free-ranging, book-crazed kids, outdoors at least as often as we were indoors — but we did watch some TV.

I remember being annoyed by ads that divided up toys along strict gender lines (who says girls didn’t play with Hot Wheels, or boys with My Little Pony?) and I remember being really, really annoyed by the theme song to James Bond, Jr., which included the line “… As he rescues the girl!”

The part of me that was semi-aware of such things was like, “Hello, this is the 90s, probably ‘the girl’ can take care of herself!” I’m not sure if that was actually a kind of an in-joke and The Girl in question did more rescuing than Mr. Bond Jr., because the show didn’t have any talking animals on it, so I wasn’t interested.

Anyway.   So I was aware of gender issues, but in this very limited kind of way founded on the idea (common to lids in general) that the foundations of my world were just like everyone else’s, and that everyone was equipped with the same set of tools that let my sister and me roll our eyes and call bull when we spotted something obviously sexist.

So basically, grown-up life has been a long series of little shocks in which I’ve realized that, yes, sexism is still a huge thing (and not just in other far-off countries like Texas), and that it’s a big thing, and that it’s a subtler thing than I ever could have guessed. Oh, and that not everyone is equipped to see it or fight it.

For many women, I suspect this is definitely an eye roll moment: “Like, duh, hello?  Of course it’s a thing!”

I’m right there with you: I feel like there’s a lot I should have seen sooner; a lot I still don’t see, probably**.

**Weirdly, ballet is one heck of an effective mirror for male privilege, because dudes are kind of like unicorns in the ballet world, and even a marginally-talented unicorn gets a ton of attention and encouragement (everyone likes to have unicorns around!).  

It amazes me that insecure straight dudes aren’t flocking to ballet class in droves.  Nothing, and I mean nothing, has made me more aware of my own privilege as a male (let alone as an able, conventionally-attractive male) like ballet has.

Like most kids from privileged-yet-socially-liberal backgrounds, I’ve also been raised with the assumption that, as a society, we’re making progress — we’re moving forward; that the general trajectory of the course of history (occasional backpedaling notwithstanding), in relation to human rights, is forward.

In a sense, we are: take, for example, the huge cultural conversation about sexual assault on college campuses***.

***Though, for now, let’s leave out the other side of that coin: the side that asks, “But young people get raped just as much or more in places that aren’t bastions of privilege; where’s the uproar about that?” That’s an incredibly important problem, but it’s also a different post.

Not that long ago — a heartbeat ago, on the scale of history — that conversation couldn’t have happened. The straight male voices that dominated cultural discourse would’ve said, “Ha! This is nothign but a bit of hysteria. You little ladies should get back to your Early Childhood Education studies and leave the big problems to us men.”

Now we can talk about it, an we are talking about it.

And that conversation has been revelatory: particularly, it has revealed how utterly blind a lot of dudes are to their role in the problem. And while a lot of them have predictably been public asshats about it, some have woken up and said, “Holy crap, I am part of this problem.”

Most importantly, though, women have stood up to speak, and are still standing even after some pretty intense efforts at shouting them down, and that’s a fine thing****.

****Never mind that some campuses have responded with bass-ackwards “Don’t go out at night if you don’t want to get assaulted” policies.

Like, seriously, people? THIS IS 2015. We should all know by now that that isn’t how it works.

So we’re making progress there, by fits and starts.

Yet, at the same time, in other ways, it feels like we’re going backwards.

A case study:

A while back, after the bazillionth ad for hair dye or straightener or something during some TV show I want watching, I said something to Denis about how it seemed like everyone always wanted whatever kind of hair they didn’thave, and that I felt lucky that I was happy with mine.

And then I realized, wait — this is sexism in action. It’s capitalism feeding on sexism; on the kind of sexism that makes women feel like they’re never good enough the way they are, no matter what.

This whole snowball is about insecurity: all these ads were aimed at women, and they all began with the assumption that if you were blonde, you should want to be brunette so guys would think you were smart and mysterious or something and want you, and if you were brunette, you should be blonde so guys would think you were vivacious and fun or something and want you, and if you were somewhere in the middle, you should maybe go full ginger, because everyone knows gingers are unpredictable force-of-nature sexy vixens and guys love that.

And I realized that I am more or less satisfied with my hair because I’m a guy,and I don’t have an entire culture and all my friends telling me I should try some other color or maybe get a perm*****.

******Not to say there’s anything wrong with dying your hair: IMO, your body is no less valid a canvas for self-expression than a canvas that you can hang on the wall is. But that’s not why something like 90% of the women at school have the same highlights; the same dye job. That’s culture telling people how to look, which is the antithesis of self-expression. Where I live, in the Northern Southern Eastern Midwest, the idea is to be blonde.

We’ve reached a point now where guys are starting to do this stuff, too: eating disorders in men are on the rise (when I was 13, I was an anomaly as an anorexic dude; not even a blip on the cultural radar; now, the problem is noticeable enough that there have been a few documentaries about it), etc.

In one sense, maybe that’s a good thing: it says that men are at last beginning to be subject to the same market pressures as women, if on a much smaller scale.

Let’s face it, dudes: ladies who are shaped in any way differently than the whatever the culture has deemed correct take way, way more flack than men who are equally divergent. Likewise, while we guys may catch a little more flack when it comes to making career choices that are aimed at giving us more family time (as opposed to more money), women are more than compensated there with an exceptionally heavy load of cultural crap-flinging no matter what they choose.

Here’s the thing: while we’ve upped the market pressures on ourselves, we’ve also upped the pressures on the women. I suspect that “good enough” has never been good enough for women in our culture — but now it kind of looks like maybe even perfect isn’t good enough.

If you’re a fast-track career woman but not Supermom-cum-Wonderwife, it’s not like our culture says, “Ohai, you’re doing great, actually!”

Instead, it’s all, “Yeah, well, Angelina Jolie has a zillion well-adjusted kids and a high-powered career and still finds time to bake all-organic quinoa crisps.”  (Helpfully leaving out that Jolie can afford to pay someone else to do the marketing or watch the kids and can afford to take the rest of her life off if she so chooses.)

Meanwhile, dudes still practically win the Nobel Peace Prize whenever they manage to heat up a frozen pot pie without also burning down the house, because LOLz, cooking for the fam is totally still for chicks******.

******Yeah, I know plenty of amazing, involved family men who would see how this insults both them and the women in their lives — but it’s still a cultural reality, QV every household products ad ever, and this presents problems for everyone. Again, there’s an important thing going on there, but it deserves its own treatment.

So, in short, we’re still a long way from equal, around here. And I’m pretty sure that’s not what our grandmothers and great-grandmothers were after.

What I’ve learned by being a dude, but also a gay dude, is that having privilege is (rather aptly) just like being a fish in water: you have no idea that you’re surrounded by it, buoyed up, floating in it, until you encounter some air-breather that’s caught a toe in some seaweed and is struggling and going, “Holy crap, how can you not see why I’m drowning, here?  This stuff is everywhere!”

And, then, what you do with that information is up to you. You can either help an air-breather out or you can go, “I don’t see what the problem is; I’m breathing just fine.”

Only, like, that analogy can only go so far, because we also make the water, and (after a period of adjustment) we’d be okay without it. Those of us who already hold a fair bit of privilege have a lot to say about which way the culture turns — that is, whether it’s a place that’s harmful to air-breathers, or a place where both air-breathers and those of us who can choose to breathe water or air can both live.

So now I keep an eye out for my own privilege, because it’s up to me to not be that guy.

Yeah, this gets weird and difficult sometimes: like, when I realize that as a boy from the frenetic Northeast, my entire conversational style makes it really hard for a girl from the South or Midwest to get a word in edgewise. But part of being a grown-up and wearing my big-boy trousers is learning how to handle a little discomfort.

I can back myself down, listen more patiently, and so forth. That doesn’t mean, by the way, that girls from the South can’t also adapt to different conversational styles: they can and do, but it’s still my job to meet them in the middle and to figure out what I’m doing wrong.

That’s part of what being equal is about: I don’t get to feel like my way is the only right way. I don’t always have to agree with the way other people do things, but I do have to give them full consideration.

So basically I feel like we’ve got a long way to go — and I think that every inch of progress we make along that way actually makes the world a better place for women and for men.

As for that golden future the Feminists of earlier generations envisioned: I used to think we were already there.

Now I know we’re not.

I also know that while women probably can move ask the mountains to get us there entirely on their own, they flat-out shouldn’t have to.

It’ll be a lot easier for everyone and better if we guys wake up, smell the privilege, roll up our sleeves, and help out (after all, we built those stupid mountains that are in the way).

So, um, I hope this is all okay. When I stated writing this, I thought I knew what I was saying, but it got away from me (like, you know, every blog entry in the history of ever).

Anyway, here I am, and here’s my shovel, and I hope I can help move these mountains, because I’m realling looking forward to dancing together on the other side.

The Wave Rolls In

This morning, I can’t say that I was doing brilliantly well, emotionally speaking.  Although I am still wearing my chipper facing-the-world persona, I’ve been wrestling a depression.

Today’s calf injury, coupled with a message about a bill I apparently forgot to pay, has pretty much capped it off.

The call injury shouldn’t be a big deal, emotionally.  Shouldn’t, but it is.  I can’t explain why because I don’t understand why.   It’s not even like I can’t go to class for the duration; it’s just that I have to back off the pace.

I try to stay upbeat and keep a positive attitude and all that.   Somehow, though, this just feels like a setback I didn’t need.

I could get all emo about this, I guess, but this is about as much as I feel comfortable writing, today.   This is the point at which it starts to feel like whining into the wind.

So that’s that.

Please enjoy this picture of my cat mucking about with some poor, deranged bug that thinks it’s suddenly spring:

image

Crazy Post-Adolescent Ballet Obsession: Reflections on Almost One Year as a Ballet Squid

I am convinced that there are basically only two flavors of adult* ballet students.

*I’m using this term loosely, here — at least as regards myself.

There are those like Denis — people who go to class once a week or so, enjoy it, and even develop an extensive ballet-specific vocabulary.

People who like to watch ballet, who enjoy being around dancers, who can even carry on conversations with dancers without going all glassy-eyed at the third or fourth mention of some obscure ballet term or yet another vivid description of some random dancer’s feet. People who like ballet, dance a little, and yet somehow just float along on the surface of the roiling tide that is our chosen medium.

…And then there are the rest of us.

You know who you are. (Ahem. Hi! :::waves enthusiastically:::) Those of us who cram as many classes as we can find into our schedules, purchase untold lengths of high-powered elastic with which to strengthen our feet, and practice adagio in the kitchen as we baste the roast. Those who understand what it means to crack an ankle on the dishwasher while attempting turns a la seconde (also in the kitchen).

Those who understand that the kitchen is simply where one practices turns. And adagio. But not allegro, unless the kitchen is also really big.

Those of us who find ourselves possessed of twenty-three tennis balls, even though we don’t play tennis (probably bad for the turnout), because we bought one to roll out a kink in a leg muscle, and then the cat made off with it, so we got another, which the cat also stole, and so forth.

Those of us who have collected six pairs of demi-pointe slippers in an undying quest to find the perfect ones for our particular, unique feet (or out of simple, obsession-driven avarice; also completely valid). Those of us who can identify, among our apparently-infinite arrays of highly-similar tights, not only which are the best ones, but why — and who will simultaneously weep and take up arms if ever their manufacturers stop making them.

Those of us who can intelligently discuss the problems unique to dance belts or pointe shoes.

Those of us who automatically make up choreography in our heads whenever we hear music, including video game music**.

**Yesterday, we were babysitting our nephew while awaiting the call to come welcome our new niece to the world (the fact that this post is entirely about ballet obsession theory, and not about having a brand-new relative, should tell you something), I found myself making up little-jumps combinations to video game music — you know, changement-changement-changement-changement-echappee-changement-changement-changement and so on). Part of me thought, “I am awesome!” Another part thought, “Ye gods, what have I become?”

Those of us who take up ballet with an off-hand comment about how it can’t possibly be more expensive than racing bikes, and then later realize that we dare not even breathe aloud the sum total of the year’s ballet budget***.

***”It’s still cheaper than therapy,” we might argue — if by “therapy” we mean full-scale, long-term retreat-from-the-world style therapy at a posh Mediterranean spa on a fabulous island. Or, at any rate, it’s cheaper than buying an island. Maybe. In fact, let’s not do that math.

Those of us who — explicably or inexplicably, either because we danced as kids or because we never danced as kids, either because we always wanted to dance or because we never thought of it until one day we stumbled into a free class and then … well, you know the rest of the story by now — find ourselves utterly subsumed by the aforementioned roiling tide, upon which our arguably more mentally-balanced friends float with such ease.

My completely unscientific survey of my fellow adult ballet students suggest that the former group — the Denises of the adult ballet community — are in the minority. I am left with the impression that ballet, perhaps by its very nature, either demands or creates unstinting**** dedication. This may be partly because I follow the blogs of other ballet-mad individuals and take my classes at a pre-pro school with a pretty demanding teaching staff, but I suspect that it’s mostly the truth.

****Or, at least, unstinting within the constraints of budgetary realities.

I think that, like cycling, ballet asks a lot of those who participate. New students filter in and either get swept away on the tide or filter out again after a while. Once in a while, someone like Denis manages to stick around without becoming completely obsessed, but anyone who happens in hoping primarily for a social outlet probably tends to happen right back out again.

Ballet (again, like cycling) is at once social and unsocial. It is a near-universal rule that dancers go to class, and that classes should be made up of several dancers at least; the nature of the form demands a group. However, we don’t socialize in class. We might chat in the hallway before class. We might grab a bite to eat after. We might throw out an occasional off-hand comment (there are days that I’m that guy in class; the one sometimes can’t repress the urge to make some random comment that helps him remember something: “So, no gorilla arms?”) or an eyeroll or a snippet of banter across the barre.

We direct respectful questions at our teachers; we listen to and absorb their instructions; we occasionally trade high fives.

We do not talk: not in the sense of carrying on meaningful verbal exchanges (or meaningless ones; nothing wrong with just shooting the breeze, if you have that skill). We are not treadmill buddies (not that there’s anything wrong with treadmill buddies!): we are dancers.

We come to work*****.

*****And that’s what we call it: work. As in: “I was working at the barre, and…” To be honest, to call it anything less would misrepresent not only the sheer physical effort required but also the religious dedication we bring to the studio (even those of us who joke about gorilla arms).

We come, in a sense, to worship: the instructor, perhaps, is our hierophant, interpreting the sacred mysteries, conferring them upon each class of willing acolytes.

In short: I feel like ballet deserves devotion. Part of me recognizes that becoming so fundamentally obsessed with something like dancing is outside the realm of typical adult experience (kids, however, do it all the time) — but, as Denis says, “Average was never the goal.”

As for me, almost a year after I finally goaded myself back into the studio, I’m glad I’ve become one of the ballet-mad throng.

Dancing has given shape to my life in a way that I didn’t expect: I didn’t particularly expect it to lead me to a career path, let alone one that I’m champing at the bit to undertake. I didn’t particularly expect it to eclipse cycling as an organizing force (in fact, I rather naively expected to continue racing bikes from time to time! Ha!). I didn’t expect to restructure my life, my eating habits, and ultimately my body in service of some art form in which I may or may not ever find an opportunity to perform before an audience******.

******Who am I kidding? If I can’t find an opportunity, I’ll make one.

I write this all in an attempt to better understand, for example, why it seems so bleeding important to perfect my petite allegro, to acquire a decent set of exercise bands for my feet (I had a green one; it did not survive), to Do All The Classes!

Call it part navel-gazing and part homage to the beloved.

There you have it, though: I am happy to be obsessed. Glad that I have given up my life to the harsh mistress called ballet. Also not remotely embarrassed to be seen in public in tight and legwarmers, though it’s not like I was before (because cycling).

I have been back in the studio for almost a year, I am hopelessly obsessed, and I am the better for it.

~~~~~

In other news: I am officially going to the Big Burn this year. Yaaaaaaaaaaaaaay!

Tickets are purchased (as members of an official theme camp, we were able to buy tickets through the Directed Group Sale). Thus, it looks like my choreography project is a go (See? Performance opportunity made!).

So now I need to settle down, really finally finalize the choreographic framework, write it down, and start looking for other Burner-Dancers (or at least Burners who would like to try to dance; the goal is to make most of this choreography simple enough that we can teach it to raw novices).

So that’s what’s what today. I’m hoping to squeeze in an extra class this week on Friday (yes, my inner Obsessed Ballet Zombie just howled, “IT SHOULDN’T BE EXTRA!!!!!! THAT’S SUPPOSED TO BE PART OF THE SCHEDULE!!!!!!!!”).

Now … where’d I put that tennis ball?

Ballet Squid Chronicles: On Poor Choices and Owning Them

A while ago, I wrote about returning to class after my extended winter break (link to come).  Among other things,  I said that I felt like a pudgy dancer.

I realized at the time that “pudgy” was the wrong word for a number of reasons.

First,  it wasn’t the word I wanted, and didn’t actually convey the concept I hoped to express, but I wracked my brain and couldn’t come up with the word I knew I was looking for.   Like autocorrupt on crack, my brain kept suggesting “pudgy.”  Finally, I gave up and used it.   Twice.

Second, it’s a loaded word.   Like “chubby,” it’s one of those words that means “adorably chunky” when we’re describing puppies or baby elephants or cartoon orcas or toddlers or what have you, but something else entirely when applied to human adults (never mind that some of us,  myself included, like how “pudgy” looks on other people; I married a slim guy, but I’ve always preferred big guys — pudgy guys, in fact).  So it’s a word that implies a kind of judgment I try not to make, and also reveals the double standard by which I judge myself.  “Pudgy,” in short,  is a word that can hurt.

Third, the dance world is full of implicit (and, sometimes, explicit) judgments about body size.   I’ve written about this a couple of times (again, links to follow).   I try not to participate in this particular hegemony: I think dancers of all sizes can be beautiful.  That doesn’t mean I’m not affected by it,  though.  I am both human enough to admit that I  do experience reflexive moments of size-ist thinking, and to say that those moments are often concurrent with their opposites: one part of my mind will be thinking, “Wow, that one dude in the corps is pretty hefty,” while another part of thinks, “He looks really great up there.” 

The difference is that the first of these thoughts is a conditioned reflex; the second is a feeling.   So while my conditioned thoughts — the ones influenced by cultural dictates — are busy being jerks, my actual gut feelings are appreciating what I’m seeing.   It’s weird, uncomfortable, and cognitively dissonant.

And when I use words like “pudgy” in contexts where they mean something bad (in this case, the word I really wanted was “clumsy”), I reinforce the cultural dictate that says dancers need to be shaped a certain way — even if that’s not what I believe, feel, or mean to convey.

Even if I really genuinely believe (and I do) that dancers actually need to be shaped all kinds of ways, my intentions don’t matter in a static context that doesn’t convey them.  What matters is what I actually write.

Lastly, there’s a part of me that still genuinely believes that everyone else can be great and look great at whatever size but I need to be, in a word, skinny.  That voice is always there.   It was there when my BMI was 14.5.  It was there when my BMI was 30.  It is still there now, when my BMI is 24.

Every time I make a disparaging remark about my own weight, I reinforce that voice.  Yes, I need to talk about that voice, and to acknowledge what it says (ignoring it sure as heck doesn’t make it go away) — but I need to do so in a way that reduces, rather than increases, its power.

I need to do that for me, and I need to do that for everyone else who has that voice (which, to a greater or lesser degree, is everyone).

~~~

I thought long and hard about whether to write this at all.  I’m just going to go ahead and admit that, in short, I was debating whether or not to stick my head in the sand and hope nobody noticed my apparent act of woeful hypocrisy.

I was being a coward, but I guess I was also thinking about what I said (“pudgy”) and why (because my language co-processor was on the fritz, but also probably because I was having a exceptionally poor body image day) and what to write about it (this, it turns out).

I’m glad I did: that is to say, glad I tool some time to think about it, and also glad I took some time to write about it.

If my choice of words hurt you, please know that I’m sorry.   Nobody deserves to be hurt (except maybe masochists who have been really good and done all their chores ;)).  And I guess I should apologize to myself as well, because I am a dick to myself way too often.

For what it’s worth, I really do mean what I say: there’s room in dance for all kinds of bodies, all colors and sizes and shapes and abilities.   All of those different bodies are valid and valuable — and just as painters have expanded their palettes as new media have emerged, it behooves those of us with choreographic ambitions to expand our palettes to include all kinds of bodies (“Oh, brave new world that has such creatures in it!”).

I’m hoping that,  having written this, I’ll think of more to say on the topic.   For now, this is it. 

Go forth and be pudgy and proud, or svelte and sublime, or medium and miraculous: no matter your shape, dancers of the world, the things your bodies can do are amazing.

Ballet Squid Chronicles: Brief Thoughts on Paul Taylor Dance Company

Tonight we caught a performance of PTDC’s 60th Anniversary tour.

Really amazing stuff — Taylor’s choreography is the work of someone clearly literate in the language of classical ballet, but able to leap beyond its boundaries and forge a kind of syncretic modern dance vocabulary suffuse with free and playful movement.

It reminded me of our Introductory Intensive with the amazing Linnie Diehl at the ADTA conference this year.   We talked about Laban movement analysis, and about the qualities of movement — about how some people (and dance forms) are very formal and bound (hello, ballet!), while others are fluid and free.  We also talked about how sometimes dance forms or people encompass more than one style of movement.

Paul Taylor’s choreography captures that principle: it can work within the formal vocabulary and syntax of ballet at one moment and discard it the next.

I’d love to reach a point in my own life — as a dancer, but also as a person – at which I can do that.   The language of ballet works for me because I am, by nature, rather formal and bound.   My best days in class, though, are the days when I’m the most free; my best moments in general happen when I manage to let go of the concept of doing things correctly and precisely and instead I just do them. This is part of why I love clubbing: I get to be free, to be moved by the music, to toss the rules out the window (don’t get me wrong — I actuality love the rules of ballet; they are the restrictions that perfect the art).

I want more of that in my life.   I want to incorporate a little of Paul Taylor’s freedom into my own work as a dancer.

I think the next time I’m in New York (whenever that is…) I’m going to drop in on their daily class.   I may be a ballet boy at heart, but I suspect there’s a lot I can learn from these modern dance mavens.

As for you guys out there in Internetlandia — if you get a chance to see Paul Taylor live, snap it up.   And if you get a chance to dance with them (which is how I learned of their existence — they came to our class a while back), snap that up too.

Bipolar as Unexpected Gift

I’ll begin, here, with a caveat: bipolar disorder is hard, makes life harder, and really sucks a lot of the time — but sometimes that makes the ways in which it’s a gift all the more startling and meaningful (at least, it does for me).

As such, take all of this with however many grains of salt your own experience requires at this time. Just because I feel like I’ve discovered a secret bonus doesn’t mean that’s everyone’s experience, or that everyone needs to feel the same way. To borrow an aphorism from the kink community, “Your Bipolar Is Not My Bipolar, And That’s Okay.”

~~~~

It has become somewhat de rigeur to talk about bipolar disorder as, perhaps appropriately, both a curse and a blessing.

With it come harrowing depressions and dizzying (sometimes terrifying) manias, instability that can wreck careers and lives, a powerful predisposition to addiction, the very real possibility of significant cognitive decline, and a staggeringly high rate of suicide and attempted suicide.

With it come also blindingly brilliant creativity, periods of super-human productivity, and minds that work rather different from the norm, which in turn sometimes bear stunning and unexpected insight.

It has become the done thing to acknowledge that latter set of realities, though too often only to dismiss them: Yes, you have these gifts, but holy cow, look at these costs. What are we gonna do about these costs? This isn’t to say that defraying the costs (metaphorical costs, here, not the actual costs in actual money) of bipolar disorder isn’t immensely important — it is.

Yet, too often, it’s done without any consideration for the losses incurred; the surrender of the holy fire in exchange for a more-stable life.

Too often, those of us with bipolar are expected only to embrace damage-control, and never to mourn the loss of the gifts of sacred fire.

That, however, is a post for another time (albeit an important one).

I’m not writing about those gifts today.

Instead, I’m writing about the unforeseen gift of mental illness itself.

~~~~

I grew up in a family that was both very privileged and very gifted. My sister and I were both subject to high expectations — very high expectations. We both attended selective prep schools; we were both ear-marked early on as future alumni of elite colleges or universities. We were, it appeared, destined for “success.”

We were the kind of kids who would most likely have been subject to enormous pressures related to the pursuit of that narrow definition of success — except, in both our cases, everything went off the rails, fast.

For my part, I struggled from early grade school with hyperactivity, executive function deficits (if you think I’m bad at planning now…), serious social difficulties, and what were probably the symptoms of early-onset bipolar disorder (labile moods, fits of intense and uncontrollable rage that came and passed like summer squalls, and the same bouts of wild creativity that characterize my life today, among others). Nonetheless, I was early identified as a kid with a very high IQ and strong academic and creative aptitudes, and until the beginning of high-school, I was on the Ivory Tower track.

And then, in ninth grade, everything shattered.

My first hospitalization happened less than one month into my ninth grade year. Following that, I spent a total of more than six months over the next three years as an in-patient at three different psychiatric institutions. The rest of those three years, I spent in intensive day treatment.

Freshman and sophomore years were the hardest: those were the two years during which I was in and out of the hospital (where, perhaps a bit ironically, I enjoyed an almost-normal social life for the first and probably the last time). Those were the two years during which things were at their worst for me.

As a junior, I was able to attend a public arts magnet in the afternoons; I graduated from that magnet program as a regular senior (albeit one with no social life, no friends at school, and probably much vaguer ambitions than 99% of my peers) — but by then the Success Train had already jumped its track.

This isn’t to say that the arts magnet program wasn’t rigorous. It was: extremely so. It was selective, rigorous, and demanded an enormous time commitment. However, I was able to handle it mentally because I’d completed most of my high school course work in very low-pressure schools(1). I was able to handle it because, in a very real sense, the pressure was off: there was no chance of ticking off boxes on a list of prerequisites for some arbitrary definition of success.

There was only surviving and following my passions.

I spent the first three years of high school at very small, selective private schools — private schools whose selection criteria were based not upon academic performance, but upon severe mental illness. Private schools which focused not so much on grades or on preparing their students for ivy-league futures, but on, you know, preparing their students to have some kind of future at all. Any kind of future.

The first two schools were basically full-on survival-mode schools attached to psychiatric hospitals: academically, I would have been falling behind my age-mates if I hadn’t spent most of my education up to that point in a selective prep school with an academically advanced curriculum. Academics weren’t the foremost concern at that point: the foremost concern was surviving, not starving myself to death, not committing suicide, becoming stable enough to stop winding up back in the hospital.

None of the schools where I spent my first three years of high school were focused on trying to get kids into top-notch universities. In fact, they really weren’t all that concerned with universities at all — they were focused on helping kids survive and not wind up in the hospital, rehab, or prison.

Just getting through the day without losing “points” — that was success. Being able to go on the end-of-week outing to the bowling alley — that was success. Eventually making it back to a mainstream high school or on to a community college — that was a gigantic win; a true cause for celebration.

If a student felt confident and stable enough to apply to colleges, that was an achievement — that would make the teachers and administrators at these schools immensely proud, but it wasn’t a major focus of any of these programs. Likewise, there was a real recognition that one’s worth had nothing to do with such markers of material success — so there was no pressure about it at all.

And so, with the pressure off, I learned a couple of things.

First, I learned that “success” was a pretty flexible idea.

Second, I learned that failing to tick the check-boxes on the road-map to a more typical kind of “success” doesn’t mean you can’t get there. There is, after all, usually more than one route to a given destination.

I applied to six or eight small, highly-selective colleges (including Amherst, Bennington, and Marlboro) when I was graduating from high school. I figured I didn’t have much to lose, so I wrote very frank, honest admissions essays about my experiences as a queer kid who had been through the psychiatric wringer.

I was accepted with scholarship offers to every single school I approached, and I suspect that my frankness about the path I’d trod to reach the point of application had a great deal to do with that.

Ultimately, I chose not to go, just then: I knew I wasn’t ready, which represents an entirely different kind of success, one that might feel very alien to most people from my particular background.

It’s weird how sometimes our weaknesses become our strengths.

Bipolar disorder derailed my life. It also afforded me the opportunity to discover that going off the rails isn’t the end of the world; that, in fact, as so many people wiser than I have pointed out, the greatest adventures take place when you wander off the map.

Bipolar taught me that you can, in fact, choose a new path; that you can redefine success; that you can always start over.

I learned that it is possible to make a comeback — and also possible to decide what “making a comeback” really means. I learned that success can be defined in many ways, and that sometimes you change your mind mid-stride about what “success” means.

Sometimes, when I’m frustrated about being “behind” my peers (who are, by now, completing graduate school or out making their way in the world) in terms of worldly success, it helps to remind myself of this fact.

Part of me still vaguely regrets the fact that I didn’t go to either Amherst, Bennington, or Marlboro. I think any of those experiences could have been awesome. They also might have been more conducive to a more typical path to a more normal kind of success. Then again, they might not have. I chose not to move on to higher education at the time because I knew there was a high likelihood I’d crack and flunk out, after all — and then I’d probably be right where I am now, anyway.

If you’d told thirteen-year-old me that I would wind up at a branch campus of a public university in the Midwest and that I’d be happy with that outcome, I probably would have looked at you as if you’d grown another head. I didn’t really have a coherent long-term vision at that time, but that sure as heck wouldn’t have matched any shred of a vision I did have. For that matter, I had only the vaguest sense of what and where the Midwest really was (at the time, I was all about Vermont).

So, basically, what I’m saying — here’s the TLDR version — is that one of the greatest gifts bipolar has given me is the gift of derailing my life.

That gift has allowed me to redefine success, to pursue my own definition of happiness, and (not insignificantly) to meet and marry the love of my life.

Yes, bipolar has made my life harder than it could have been. It continues, at times, to make my life hard. If I had the chance to wake up tomorrow without bipolar disorder, I might take it (if it didn’t come with side-effects and didn’t mean sacrificing the creativity that drives so much of my life).

And yet, at the same time, while bipolar has made my life harder, in a way it has also simply made my life.

And that is an unexpected gift.

So there you have it.

The next time I’m haranguing myself over how I have no right to even consider becoming some kind of psychotherapeutic professional, I will try to come back here and read this: because, I suspect, this is the gift that I have been given that I am meant to pass on to the world — the gift of understanding that a crashing derailleur can become the beginning of a beautiful journey, and that maybe the best thing that can happen is to simply lose the map.

Cue Rocky Theme

I’m cautiously optimistic that I’m recovering from this week’s episode of depressolepsy.

I got to sleep without any trouble last night (regardless of the caffeine).   I woke up once at around 01:30 to stumble, zombie-like, to the head, and then to stumble onwards into the kitchen, where I ate one quarter of a baguette because I was starving.

This morning I’m up and about and feeling mostly human: predictably, my ankles are stiff (they always are after I take a break from ballet and then return to class),  but otherwise I’m making it.

I am debating whether I’m ready to jump back into intermediate class tomorrow morning.   It might behoove me to do Saturday’s beginner class instead for a couple of weeks in order to get back on form, even though that will mean following a W/S/S schedule for a bit, which seems a little weird.

In other news, I broke off the Karakoram’s wing mirror yesterday, so I snagged a replacement from Bardstown Road Bicycle Company.  It’s a “Mountain Mirrycle,” and it is hands-down the single best bike mirror I’ve ever had.

So that’s it for now.   Today is for homework, chores, and going on a date with my husband (woot!).